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Standing on the precipice of mental health

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Sometimes it feels like I am in a movie and i’m clinging onto a cliff edge while the ground beneath me is slipping away. As with most blockbusters I survive and get back onto safe ground. Although I just feel that I am never very far away from that threshold at all times and the potential to go over is always there.

I am not talking about suicide (not for me anyway), I am talking about the feeling of falling into poor mental health and it spiralling out of control. Where that spiral will take me is anyones guess and I spend my life making sure I dont end up there but living with that threat and fear isnt always easy.

My own struggles, which are prodemanently depression and anxiety, although having had an eating disorder in the past this is something that will always make a unwelcome appearance every now and then. My goal in life is to bring my children up well, to allow them to be filfilled in whatever they do and to respect themselves (mind and body). To do so I have to have the same goals. This is tricky when you feel like you are standing on a precipice of mental illness.

Recently I have been struggling more than normal. To visualise it I would say I am probably only a few feet away from that cliff edge where as at a stable time I am comfortably a few metres back.

A mixture of financial stresses, not being able to find work, having been physically unwell and a few family issues have my mental health take a turn for the worst. When it does it very to see a way back, I always say it feel like a fog decending on me.

What we must try and keep in mind is that we can claw it back, we can and will feel better again, but it doesnt have to get to breaking point to do so. For myself I keep a close eye on signs that I am slipping deeper and closer to that edge.

To give you an example here are …

My Signs

  • lack of concentration
  • insomnia
  • questioning my food choices
  • worrying that people dont like me (I think this all the time but normally I can rationalise my thoughts)
  • worrying that people are talking about me (same as previous)
  • questioning myself about normal daily tasks
  • social withdrawal
  • over talking
  • anxious more often than not
  • feeling like I have put on weight when I weigh the same

I cant stop these “things” from happening and I also can’t just give myself a talking to and then “get on with it” or just “cheer up”, but i can try and help myself. An obvious option is for me to go back to my doctor which if all these feelings carry on I will and I have already considered raising the amount of medication I take but I would like to give myself a bit of time with my present dose (I take Sertraline for anyone wondering) and a lot of self care.

What we sometimes forget is that we have to help ourselves, giving ourselves time will in the long run be far less time consuming that fixing a broken version of yourself.

But where do we start?

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It is all about small steps and the very first thing I do is write two lists.

The first one is a long term list (say within the next month), and the second is a daily list.

For example

Long Term List 

  • Do a face mask
  • Give yourself a manicure
  • Finish your book
  • Make nativity costume
  • Clean out kitchen cupboards
  • Sort through the girls clothes
  • Organise class christmas party

Daily List

  • Wash hair
  • Put on make up
  • Take anti depressant
  • Stick a wash on
  • Empty dishwasher
  • Clean kitchen
  • Mop floor
  • 5 minutes meditation
  • 10 minutes yoga
  • Walk dogs
  • Vacuum lounge
  • Put away ironing
  • Call to book hall for party
  • Pack girls bags to go to their Dads
  • Go through calendar with christmas dates
  • Apply for 5 jobs
  • Finish Blog
  • Pick up girls
  • Go to shop
  • Cook dinner

The point of having two is that its great for your own wellbeing to get some instant gains, looking after yourself and your home will make you feel instantly better. Tick off the items once they have been done and write a new one every morning.

Some of you will think that having to put wash hair on a list is ridiculous but I am telling you we all need to remember to give ourselves a few moments. Being a mum at home I sometimes think it doesnt matter what I look like as I “don’t have a proper job”… its not true, I do have a job and I do have to look after myself. Sure wear a tracksuit to school but do so with clean hair and a bit of mascara.

Three times a week on my daily list I also add a run but I have made an effort everyday to meditate using an app plus a simple yoga routine I have found on youtube. Anyone can do it and I am not sure I am doing it correctly but its about feeling calm even if its just for a short preiod.

The long term list is because we all know that with a busy life we have to grab moments, so finishing a book could take a while but I promise you it will help with your concentraion plus means you are not on your mobile which is a huge contributer in poor mental health today.

So this is my current plan, I am unsure it will be the end of this chapter and maybe I will need more medication but c’est la vie, at least I am trying. No negatives can come of it and thats all we can do. Hopefully one day I will complete a daily list but for now I will just focus on the ticks.

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adventures, blogging, body image, children, family, health, help, hospital, instagram, mental health, motherhood, mum blogger, mums, parenting, school, self love, Uncategorized, women, writing

Childhood Mental Wellbeing

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World Mental Health Day is a day for global mental health education, awareness and advocacy against social stigma. 

 

Well that sounds like a pretty important day to mark if you ask me. I spend a lot of my time on social media talking about my own experiences when it comes to my mental health. I do this to try and normalise mental health and do my little bit in reducing the stigma attached to it.

While that goes on what I also feel incredibly passionate about is childhood and adolescent wellbeing. Depression, anxiety and many other mental health battles are becoming more and more common amongst young people. 1 in 10 young people will be affected by mental health problems but unfortunately 70% of these won’t get the appropriate interventions. 

It’s become clear that mental wellbeing is just as important as physical health. Just last night I went to a talk about teenage anxiety and it was filled with great and simple advice to help our children. 

  • healthy eating 
  • Exercise
  • Good sleep
  • Less social media 
  • Less screen time
  • Turn off phone at night 
  • Keep hydrated 
  • Talk 

This all being said the government have promised changes and to increase the budget given to childhood mental health services because at the moment needs are not being met due to huge shortfalls in the system. The NHS is stretched and waiting times for initial interaction after a mental health referral from your GP is 18 weeks and even after that your child/ the child may not meet the criteria as only the most critical cases can be seen. This means we as adults whether it’s parents, friends, teachers, grandparents, family members etc, we need to help this younger generation. There are a huge number of websites out there which have great references.

Here are some great sources of support

  • Great site for young people and parents. It even has a parent hotline.

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https://youngminds.org.uk/ here

  • A brilliant page for young people to feel safe and can speak about their problems

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https://kooth.com/ here

  • Get some ideas and downloads for ways to cope. We have to help ourselves.

https://www.getselfhelp.co.uk// here

  • A fantastic site for parenting advice. They also run handon workshops! We all need help and advice when it comes to parenting.

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http://www.theministryofparenting.com/ here

blogging, body image, herione, spinal cord injury, Uncategorized, women

The day I met a real life heroine – Marrianne Rooprai

35508636_1953950764618012_288844264417263616_nSometimes you meet people who truly inspire you, in fact they truly inspire everyone that they meet. At a summer ball I went to recently I was lucky enough to meet a woman who is truly coragious and showed more strength than I have ever known. Her name is Marrianne Rooprai.

On June 12th 2004, Marianne’s life would change for ever. After attending a friend’s wedding she was involved in a devastating car accident which left her in intensive care, she had a broken neck and was fighting for her life. Initial diagnosis made her friends and family fear that she would be paralysed from the neck down forever but they were determined not to just accept it. The fight was on. At first it was just the family fighting for her, but when she could, Marianne determinedly took over.

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Marianne was moved to a spinal unit in Sheffield and suffered some scary dips in her health. However, Marrianne’s tenacity began to show as she started to battle the physical minefields ahead.

Every step of the way she was suprising the doctors by reaching milestones ahead of time.

At the beginning of August she was able to breathe without the help of a ventilator and 9 days later her traction (which was keeping her body completely still with the use of weights) was taken off over a month ahead of the inital schedule. She was fighting back.

The boundaries didn’t stop being smashed and as soon as she could Marianne was in the physio gym where she spent as much time there as she could till she left hospital. It was with all this hardwork her medical team could see a small amount of movement in her right arm – which blows the smoke out of being told you would be paralysed from the neck down. This is only the beginning.

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From this point Marianne started to “blaze her own trail” in the SCI (spinal cord injury) world. She and long term partner, Andy,  would listen to advice given but essentially make decisons for themselves about the best route to take.

They were not under the illusion that some miracle cure was going to come along but through hard work physically and psychologically they would ensure that Marrianne would be ready if and when any new developments in research were to come along. Marrianne’s goal is to one day walk again.

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In 2005 Andy made the decision that they should set up the Rooprai Spinal Trust. He wanted to start a trust that would give Marrianne every possibility to become mobile, but also explore all the types of rehabilitation available to anyone with SCI and the progress that could be made with it. They wanted to break boundaries that were currently in place and that is exactly what Marrianne has done. She inspires people all over the world with what she has achieved.

The couple say that they found the greatest team of physios at Prime Physio and they are motivated and driven. This means that they will accept that progress can be made by everyone given the right amount of time. The work they do with Marrianne every week (she goes there twice a week for 2 hours each session) has enabled her to use an ESKO walking machine which has allowed Marrianne to experience the outdoors on her feet. Something we take for granted is walking outside in the sunshine, I can’t imagine having that taken away. Seeing how magical it is for Marrianne to be able to feel the freedom again will make me feel grateful for the little things.

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I have included a link so you can watch Marrianne in action Video

Andy and Marrianne also make an annual visit to Miami, to go to The Miami Jewish Home and Hospital (The MJHH). It is home to the laboratories of The Brucker Biofeedback Team – devised after a lifetime of study by the late Professor Bernard Brucker. In short what they do is try to improve and identify weak connections between the brain and the muscle to try and gain more movement. They have very sophisticated machinery that will measure neurological connection between the two.

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Through the work that Professor Brucker has done it has been shown that the body can repair itself years after injury. The amount of repair may be tiny but tiny can mean a great deal with SCI. Marrianne’s annual trips are a great boost from the other 12 months of ‘rehab’ and show her how far she has come along.

Along side this the couple have equipment which is used daily at home. Andy and Marrianne work together and use techniques they have learnt. They do have a fair amount of equipment now but it has taken them a long time to build it up. They tell people thats it is not just by spending huge amounts that they will get results. It’s about believing and putting in the effort that will make the difference. I think it’s very clear that Marrianne has done exactly that.

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Meeting Marrianne and Andy was such an honour for me. Not only are they a fantastic couple who obviously deeply loved each other but they also have a fantastic understanding between them. Life hasn’t taken the course they had planned but they are now making it their own.

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I danced with Marrianne, I drank prosecco with Marrianne and her personalilty and smile are captivating. I can understand how much she must inspire so many, especially people who have had similar injuries to herself. To be told that you won’t be able to do something again and to fight against that is the epitome of bravery.

I have the hugest amount of respect for this woman and I am sure I am not the only one who believes that she will one day walk again.

If you would like to support the Rooprai Spinal Trust or read more about Marrianne’s amazing story then please have look at their website and you can also find them on Facebook and Instagram.

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adventures, blogging, body image, child, children, family, health, help, hip dysplasia, hospital, motherhood, mum blogger, mums, parenting, school, Uncategorized, writing

My Daughters Hip Dysplasia

 

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Some of you will have heard of hip dysplasia and some of you will not have. I am sure you remember at the hospital when they check your babies hips at birth, part of what they were checking is for hip dysplasia. When babies have it there are many different treatments. Some are placed in a spica cast which immobilises the movement in the hips, so allowing them to heal or form properly and others have operations early on. It must be hard for mums and dads to have to see this but from the numerous groups I am now a member of many of these babies go on to be absolutely fine and have no future problems. Having said this there are babies and children who aren’t as lucky and end up having to have quite a few procedures throughout their early years. With my daughter it was a very different case, as with her there was no indication when she was very little.

 

5 years ago Anya started complaining about pain in her hip, she was 7 years old. It wasn’t constant nor was it so painful that I initially felt there was anything to worry about, I thought it was growing pains or something like that. After a few episodes when I could see she was uncomfortable and then her teacher mentioning it at the end of school I took her to the doctor. We were sent to hospital for an X ray but came back with nothing to show on it. This went on for another 2 and a half years, trips to A&E and being told there is nothing wrong. Then one day a few months after an x-ray was taken I got a call from my GP saying that it had been reviewed and that they thuoght Anya had Perthes disease. This is when blood doesn’t reach the bone and so eventually the bone will deteriorate. Obviously I was very worried and we were referred to an paediatric orthopaedic surgeon at Addenbrookes Hospital.

 

It was at this appointment that we were told that it definitely wasn’t Perthes disease (huge relief) but it was hip dysplasia (worry again). It was clear from the X rays what the problem was and before I could catch my breath the surgeon was talking of which surgery would solve the problem. Anya’s hip didn’t sit correctly in her hip joint, it was as simple as that and surgery was the only option, if we wanted her to be pain free. It was also explained that if we didn’t operate, early arthritis and a new hip would be likely.

 

Over the next 6 months we had a few meetings with the surgeon. It was decided that she would have a femoral osteotomy on the right leg which would change the direction the hip sat in the socket. It was major surgery and as I had never seen any of my babies put under anaesthetic before, let alone cut open, bones broken and pinned together, the whole thing was hard to take in. The waiting time was lengthy with the NHS but eventually in November last year (Anya was 11), we went in to have the surgery.

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Anya was so brave. She had had a small procedure in the summer to put dye in the joint, so she was aware of what the going to sleep process would entail. She didn’t like it much last time so they gave her a pre-med which made her cry with laughter by the time time she got to theatre mearly from being pushed down the halls and waving at strangers. We left her for nearly 5 hours in theatre, I know this is Anya’s story, but for me those hours were the strangest and hardest of my life. I had complete faith in the team but still there were always risks. It was a struggle seeing her in recovery too as she would not come around and hours later she was still sedated (I think she just liked the sleep). She had also lost a huge amount of blood in surgery and was lucky to not need a transfusion, which will obviously lead to a slower recovery.

 

The next day the realisation of the extent of what had been done hit home. Firstly Anya was very sick from all the drugs and in huge amounts of pain, the morphine button was being pressed constantly and she went days eventually without eating. The hardest thing to see was that though they assured us the operation was a success she really couldn’t move at all. Though I think part of it was her fear, for the next 48 hours they spent managing her pain and eventually she sat up. The 3 days expected in hospital became a week, but in that time Anya became able to walk with her crutches and was taught to get up the stairs safely.

 

I am now going to jump to where we are 5 months later. It’s been a long 5 months with the logistics of getting Anya to and from school and catching up on school work. Then there were the few falls that she had (one of which was me throwing her out of her wheelchair – worst mum ever), these falls resulted in a pin that was keeping the plate on her bone in place moving. Her bone growth was also slower than it should have been but we are where we are.

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So now, we still have weekly trips to Addenbrookes for physio and just last week we faced our next huge hurdle to overcome. Anya’s legs are now different lengths, to such an extent that more surgery will be needed. I have to say I am pretty devastated but at the age of 12 being told by orthotics you will need to have “special shoes” made for life, I know it is something we will have to do.

In fact Anya will need another 3 operations, 2 (at least) to correct the leg length and one to remove the pins and plate and shave some of the hip bone away at this operation as her physical shape has changed. It is now wonky (her words are “I am like KIm K but only on one side). We knew it may show but not to this extent. There is an element of vanity here but I don’t believe that a girl her age should live with this if there is another option and they will be doing an operation anyway to remove the pins and plate when they shave the bone.

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Anya has shown the most amazing amount to courage to get through all this, the time in hospital, missing her friends, the endless appointments, the pain, the scar, having to walk with a crutch still. I don’t think many 12 years olds would cope so well.

 

We are not at the end of Anya’s hip dysplasia story and so I hope soon to write another blog about a child who can run again. I know that what we have had to do is so that Anya is pain free but I would be lying if I didn’t feel so much guilt about so many aspects of it all. If only I had spotted the issues earlier, if only I had pushed when we had the endless trips to A&E, if only I could be the one going through all this instead of her.

I know that it could be a great deal worse for Anya, and I am well aware that there are a huge number of children (and adults) coping with much more but as a mother I have found this extremely challenging. We are lucky to be where we are, and have the NHS, but I just wish this chapter of our lives will be over soon.

 

I have asked Anya to write her feelings and outlook about what is most definitely her journey

 

“When I was told I had hip dysplasia I was quite shocked and scared. When the surgeon showed me (on an x ray) what was wrong it seemed really obvious. In some ways I felt relieved because I finally had some sort of resolution to the problem. It was overwhelming, because they immediately started talking about operations, but I felt like I was in good hands.

 

Now I have had the operation the pain that I had in my hip has gone but I have pain elsewhere because of having the surgery and my (now) uneven legs make my back hurt. I am not nervous about having to have the upcoming  operations but I know that the results are not guaranteed so that scares me a little. I think the biggest issue is that it’s been so frustrating, I can’t do things I want to do, or see people I want to see but I know I am so lucky to have the care I have from the hospital and my family.”

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When it comes to body image, how can I be a good role model?

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After having my first daughter I developed an eating disorder, I suppose it would come under anorexia as I really struggled to eat and felt like even the smallest amount of food would make me fat, I would skip meals by telling people I was going out for dinner later (and so wouldn’t eat lunch) and then do the opposite later on in the day, some days I wouldn’t eat, on days I would eat I would then make myself sick. I looked awful, really really awful. My skin was bad, my body was all out of proportion and my hair was thinning. I weighed 7 and a half stone, I had a BMI of 16.4 (that’s seriously underweight and should be between 18.5 and 25). It impacted into every part of my life and it would cause me panic when it came to anything food related for example family events, weekends away and birthdays. It was a very low point in my life.

Fast forward to now (11 years later) I weigh 9 and half stone and have a BMI of 20.6. I try and keep myself around this weight although last year I was a stone heavier, I only lost the weight again (very slowly) so my clothes would fit better as I can’t afford to buy a whole new wardrobe. I understand that I will always have a strange relationship with food and that I can slip into a negative place from time to time, but I have come a long way since those darker days, but what I must make sure is that I do not project this bad relationship with food and body image onto my children, but just how does someone who has had (and will in a small way always have) an eating disorder do that? How does any parent do that? We all have hang ups don’t we?

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I have used my experience as a mum to three girls (one of whom is at a very delicate age of nearly 12), plus I have done a fair amount of research. Here are my ideas how we project a positive body image onto our children.

  • Listen – When my child comes to me, I listen, no matter how silly or small the problem is I give them time. Obviously there are times where you have ask them to wait till you are free, but they do get my ear eventually and I do listen. When I am faced with problems about the body, or things that have been said about their image at school I sympathise, it doesn’t matter if what has been said is ridiculous, if it has hurt your child then its serious to them and to you. I let my girls know about situations in my life where I have faced similar scenarios as by letting them into my life I feel they let me into theirs a bit more. Yes we need to be strong for our kids but they also need to know we are human too.

  • Skills, talents and achievements – As we know there is so much more to us in this life than just how we look, but as a child/ teenager there will be stages where it doesn’t feel like that. As well a listening we need to make sure that our children know that their skills and achievements are acknowledged. Many of these skills (especially academically) will stay with them forever, where as the way we look will change drastically (looking back at photos of me aged 12 is actually hysterical and only my Mum would be able to tell that it was me). We are all special and unique, we are all good at things and we should all be proud of ourselves, this doesn’t come naturally and we must help our children realise their potential. So pay your children compliments, about the way they look AND what they are good at.

  • Self Love – This is the hardest one for me, and I cant preach that I am remotely good at it, but I do know its important. We must try and show outward body confidence, easier said than done, I know, but while researching for this and contemplating writing this bit of advice (as I feel hypocritical) it got me thinking that we all must try to be more confident for the sake of our children, and I think the more we do, the more we will believe it. Remember, our children think we are the most beautiful women in the world, lets not burst their bubble!

  • Self affirmations – A while ago, my best friend Jennie said to my girls that they must believe in themselves and love themselves, she told them to write self affirmations and say them to themselves every morning. Well, they sniggered at her. Later that week I made them do it, and though they don’t read them everyday, they decorated them and we have kept them, so when we have a down day we can get them out and read them. I kept them relative to their age, very simple to more meaningful, but not too complex. I have photographed mine and an example of a child’s. Give it a go, it helped me at least.
  • Dads – My girls are lucky enough to have a Dad and a Step Dad. A man’s perspective on women and themselves is incredibly important. The way that your husband or partner talks to you and them about appearance (men and women) is as integral as you as Mum. The same goes with the way they feel about their own appearance.

  • Food  – An essential part of life is eating and if you are like me, then sometimes it can be an issue. The way I see it is that you should show your children how to be healthy (by making healthy food choices and cooking homemade food) and also by having some treats. Let them see you eat a slab of cake once in a while, or a big burger and fries. Never eat in secret, this is a something I have real knowledge of and is very harming to children, there is nothing to be ashamed of when it comes to eating. I know some of us women like people to think that we live off lettuce leaves and air, but when we get home will be eating ham or another quick fridge find straight out the pack. Well I am telling you, we shouldn’t do this, for ourselves and our kids. Food is great, and is a social enjoyable thing, family meals are so important too, sitting toegther and enjoying food will give your children a healthy relationship with it.
  • Modern technology –  This is THE BIG ONE. The world has changed/ evolved and nearly all kids have use of the internet and eventually social media. I read a horrendous statistic today in an article called ‘uncomfortable in your skin report’ that young girls who use social media are bombarded by up to 5000 digitally enhanced images every week, what on earth will that be doing to the way they feel they should look. I don’t believe that we can stop this, yes we can educate our children to follow appropriate people but if you have a daughter like mine I think I am asking the impossible. She loves the Kardashians and that’s that. I think as parents in this day and age we have to adjust our mindset and work with this being part of our children’s lives, we have to teach them that it’s not real and I think we can show them some amazing people who are far better role models, so that they may follow them alongside the digitally enhanced loves of their lives. I have found a few amazing instagram/ web sites that are fantastic for every one to help with body image, firstly the beautiful Megan Jayne Crabbe (bodyposipanda) and Taryn Brumfitt (body image movement) both pages are rammed full of fantastic content. I have also attached a link to Taryns trailerHere  for her amazing Embrace documentary, give it a watch and if you want to you watch the full film on Netflix, I recommend it for all you Mums and Dads out there and then decide if you want to show your children, they advise on the website that it is for age 10/11+ but as that’s at the parents discretion.

I hope this has helped and as always I have found it invigorating to write. I hate to imagine my children being unhappy with their perfect bodies but I think we have to accept at times it will happen (I know I have already faced a fair few problems with the kids), it’s about us dealing with them and supporting our children in their journey.

Thanks for reading

Jo